Muscle Owl Podcast

We’re a cheeky trio talking politics, disability and events. We provide updates and engage in discussion on topics within the neuromuscular and disabled community.

Muscle Owl Radio - Ep92: Employment & Disability with Sulaiman & Vivek (OwlTalks#25 - 2016)

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Just us for another throwback episode of Muscle Owl Talks from December 2016! We discussed employment and disability, from a muscular dystrophy perspective. Featuring Vivek and Sulaiman.

 

"That sense of being able to work, the sense of feeling valued, it is so important."

Muscle Owl Radio - Ep91: Ensuring adults of all ages can get access to treatments (OwlTalks#24 - 2016)

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Here's a throwback episode of our Muscle Owl Talks video show from December 2016!

 

Peter and Jon Hastie discuss the importance of adults with Duchenne (of all ages!) getting access to treatment.

Muscle Owl Radio - Ep90: Life Expectancy & Muscular Dystrophy? (OwlTalks#20 - 2016)

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Here's a throwback episode of Muscle Owl Talks from November 2016! We discussed muscular dystrophy and life expectancy with Vivek and Jon Hastie.

 

"If you outlive the age that they say you're going to live, you can feel lost!"

 

Using life expectancy for muscular dystrophy conditions? What do we think of it? Jon Hastie and Vivek discuss how talking life expectancy can often be unhelpful for Duchenne patients, and Michaela muses on her own experiences with SMA.

Muscle Owl Radio - Ep89: Care Homes for Someone with Muscular Dystrophy?! (OwlTalks#21 - 2017)

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"I don't think we realize how commonplace this is. And it is quite commonplace. We need to question where people's legal protections are from this." Join us in Muscle Owl Talks Episode 21 as we discuss the threats of care homes to people with a disability.

Muscle Owl Radio - Ep88: No Physio for People with MD?! (OwlTalks#18 - 2017)

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"There is so much focus on us living longer lives, but if we don't have the right care, and if nobody is accountable, then what is the point?" Vivek discusses the latest All Party Parliamentary Group for neuromuscular care, which was hosted by Muscular Dystrophy UK. Muscle Owl Talks Episode 18 is OUT NOW!

Muscle Owl Radio - Ep87: Duchenne Leadership (OwlTalks#16 - 2016)

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In October 2016, we welcomed Jon Hastie onto the show for the first time, and discussed his charity DMD Pathfinders. We also spoke on how people with Duchenne can inspire each other!

Here is our Muscle Owl Talks episode 16 for your listening ears!

Muscle Owl Radio - Ep86: Access to Physiotherapy for Muscular Dystrophy Patients (OwlTalks#5 - 2016)

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Back in July 2016, Muscular Dystrophy UK hosted an All Party Parliamentary Group on Physiotherapy. One of our co-editors, Vivek, gave a speech on his experiences of physio, as a young man with Duchenne muscular dystrophy. Here is the Muscle Owl Talks episode we followed up with immediately afterwards, as we spoke of our own experiences, and how we think health care should lead.

Muscle Owl Radio - Ep85: Ableism Continued (OwlTalks#11 - 2016)

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We look back to episode 11 of Muscle Owl Talks, which concluded our discussion on ableism in society.

"Being talked to like you're not like everybody else is just tiring, but at the same time, you don't want to be mean to people."

"People are so afraid to say the wrong thing that they'll often say nothing."

 

What are you views on ableism?

Muscle Owl Radio - Ep84: Ableism in Newspapers (OwlTalks#9 - 2016)

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Are some newspaper articles ABLEIST?! What is ableism?! We're throwing way back to episode 9 of Muscle Owl Talks with the first half of our ableism introductory chat from 2016.

Muscle Owl Radio - Ep83: Trains and Disability (OwlTalks#8 - 2016)

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An AMAZING new episode of Muscle Owl Talks from last year! We discussed Zoe's debacle on a train, and Michaela and Sara keep us entertained with their experiences.

Muscle Owl Radio - Ep82: SMA Awareness Month 2017 (OwlTalks#65)

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August is SMA Awareness Month - so check out our episode from just a couple of months back! We all know spinal muscular atrophy is a form of muscular dystrophy, but how do its different types vary? Hear our co-editor Michaela Hollywood​ (who has SMAtype2) explain in our recent edition of Muscle Owl Talks!

Muscle Owl Radio - Ep81: Buses, Wheelchairs, and the Supreme Court Ruling (OwlTalks#41)

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We sat down to discuss travelling by bus for disabled people! Back in January the Supreme Court ruled a partial victory where bus drivers and operators are expected to use "moral force" if someone other than a wheelchair user is occupying the priority space on the bus. In recent weeks, bus operators and disabled people have said that more power to remove people is required.

Here is our Muscle Owl Talks episode on the topic from March 2017!

Muscle Owl Radio - Ep80: What is Limb Girdle Muscular Dystrophy?! (OwlTalks#72)

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Limb Girdle Awareness Day 2017 was a great success. Here is our special episode on the condition from the day! One of our fabulous team members, Zoe - who has limb girdle muscular dystrophy herself - explains diagnosis, adapting, and the fairly broad diversity that exists between the various condition types.

Muscle Owl Radio - Ep79: Action Duchenne Conference 2017 - Why Should You Go?! (OwlTalks#71)

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One for all families in the Duchenne muscular dystrophy community! This is our Muscle Owl Talks show previewing the Action Duchenne Conference in November 2017.

We are joined by Action Duchenne CEO Diana Ribeiro and Lynnette Ellison!

Muscle Owl Radio - Ep78: Vivek’s Accessible Trip to the Imperial War Museum! (OwlTalks#70)

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Today's Muscle Owl Talks episode features an annecdote from one of our co-editors, Vivek! We talk accessibility, and in particular, Vivek's recent visit to the airbase and Imperial War Museum in Duxford, UK with Action Duchenne and the Duchenne Family Support Group!

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