Muscle Owl Podcast

We’re a cheeky trio talking politics, disability and events. We provide updates and engage in discussion on topics within the neuromuscular and disabled community.

Muscle Owl Radio - Ep102: Fast Track to Treatments - Accelerated Access Pathway (OwlTalks#76)

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An episode of Muscle Owl Talks we recorded in early November on the British government's announcement of their new Fast Track scheme for breakthrough drugs. Peter and Michaela agree that while more clarity is needed, this is a good start.

Muscle Owl Radio - Ep101: Duchenne UK and DMD Pathfinders - Seeking Adult Perspectives (OwlTalks#75)

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An episode of Muscle Owl Talks from November, as we talked with Duchenne UK and DMD Pathfinders. Duchenne UK were looking to recruit a panel of adults with Duchenne who can give their views on potential treatments and clinical trials.

Muscle Owl Radio - Ep100: IT’S EPISODE 100! (featuring Peter & Michaela)

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It's our 100th episode, so Peter and Michaela have recorded a special one just to say thanks! We look back at some of our previous series, and talk about how Muscle Owl has changed in the last few years.

Muscle Owl Radio - Ep99: Understanding the Clinical Trial Process for Rare Diseases (OwlTalks#73)

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This week we host an episode of Muscle Owl Talks we filmed with Diana Ribeiro - the CEO of Action Duchenne. Diana answers our questions on the clinical trial process for families with a child who has a rare disease. If you have any questions, get in touch with us directly, or leave a comment below!

Muscle Owl Radio - Ep98: Duchenne Muscular Dystrophy - Just Children?! (OwlTalks#67 - 2017)

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Duchenne muscular dystrophy.... A childhood condition? After reading a number of posts from around the community, Peter and Vivek respond with their thoughts. How do you think muscular dystrophies should be communicated? Is it fair to a condition to focus on certain age groups? Is it misleading to focus on children with Duchenne when as many adults have the condition? Share your thoughts with us!

Muscle Owl Radio - Ep97: Advice for Newly Diagnosed SMA Parents (OwlTalks#66 - 2017)

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Here's our Muscle Owl Talks episode from the final day of SMA Awareness Month. Michaela Hollywood gives some advice for people who may have just had a child diagnosed with the condition. It's a reminder that the future can still be bright, and many people with spinal muscular atrophy live truly wonderful lives!

Muscle Owl Radio - Ep96: Comic Book Storylines, Superheroes, and Disability! (OwlTalks#64 - 2017)

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This week it's our Muscle Owl Talks Episode 64, where we discussed comic book storylines, superheroes, and disability! Vivek​ led the episode with how he thinks comic book storylines could include characters with a disability, and we were joined for the first time by our friend Robert Sleight​ who shares his thoughts on the discussion!

Muscle Owl Radio - Ep95: Hotel Hoists and Vivek’s Three Days in London! (OwlTalks#78 - 2017)

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Have a listen to our Muscle Owl Talks Episode 78 from just a few months ago - it's a catch up chat with the fabulous Vivek Gohil, as we chat about his trip to London, and hoists in hotels!

Muscle Owl Radio - Ep94: Michaela’s Car Breaks Down Annecdote! (OwlTalks#34 - 2017)

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Join us for another throwback episode of Muscle Owl Talks from April 2017! Michaela recounts a chucklesome annecdote of how her car broke down on the way to buy some straws!

Muscle Owl Radio - Ep93: Men with Duchenne living into their 50s (OwlTalks#29 - 2017)

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Join us for another throwback episode of Muscle Owl Talks from March 2017! Peter and Jon discuss how there are an increasing number of men with Duchenne muscular dystrophy living into their 50s.

Muscle Owl Radio - Ep92: Employment & Disability with Sulaiman & Vivek (OwlTalks#25 - 2016)

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Just us for another throwback episode of Muscle Owl Talks from December 2016! We discussed employment and disability, from a muscular dystrophy perspective. Featuring Vivek and Sulaiman.

 

"That sense of being able to work, the sense of feeling valued, it is so important."

Muscle Owl Radio - Ep91: Ensuring adults of all ages can get access to treatments (OwlTalks#24 - 2016)

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Here's a throwback episode of our Muscle Owl Talks video show from December 2016!

 

Peter and Jon Hastie discuss the importance of adults with Duchenne (of all ages!) getting access to treatment.

Muscle Owl Radio - Ep90: Life Expectancy & Muscular Dystrophy? (OwlTalks#20 - 2016)

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Here's a throwback episode of Muscle Owl Talks from November 2016! We discussed muscular dystrophy and life expectancy with Vivek and Jon Hastie.

 

"If you outlive the age that they say you're going to live, you can feel lost!"

 

Using life expectancy for muscular dystrophy conditions? What do we think of it? Jon Hastie and Vivek discuss how talking life expectancy can often be unhelpful for Duchenne patients, and Michaela muses on her own experiences with SMA.

Muscle Owl Radio - Ep89: Care Homes for Someone with Muscular Dystrophy?! (OwlTalks#21 - 2017)

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"I don't think we realize how commonplace this is. And it is quite commonplace. We need to question where people's legal protections are from this." Join us in Muscle Owl Talks Episode 21 as we discuss the threats of care homes to people with a disability.

Muscle Owl Radio - Ep88: No Physio for People with MD?! (OwlTalks#18 - 2017)

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"There is so much focus on us living longer lives, but if we don't have the right care, and if nobody is accountable, then what is the point?" Vivek discusses the latest All Party Parliamentary Group for neuromuscular care, which was hosted by Muscular Dystrophy UK. Muscle Owl Talks Episode 18 is OUT NOW!

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