Muscle Owl Podcast

We’re a cheeky trio talking politics, disability and events. We provide updates and engage in discussion on topics within the neuromuscular and disabled community.

Muscle Owl Radio - Ep87: Duchenne Leadership (OwlTalks#16 - 2016)

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In October 2016, we welcomed Jon Hastie onto the show for the first time, and discussed his charity DMD Pathfinders. We also spoke on how people with Duchenne can inspire each other!

Here is our Muscle Owl Talks episode 16 for your listening ears!

Muscle Owl Radio - Ep86: Access to Physiotherapy for Muscular Dystrophy Patients (OwlTalks#5 - 2016)

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Back in July 2016, Muscular Dystrophy UK hosted an All Party Parliamentary Group on Physiotherapy. One of our co-editors, Vivek, gave a speech on his experiences of physio, as a young man with Duchenne muscular dystrophy. Here is the Muscle Owl Talks episode we followed up with immediately afterwards, as we spoke of our own experiences, and how we think health care should lead.

Muscle Owl Radio - Ep85: Ableism Continued (OwlTalks#11 - 2016)

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We look back to episode 11 of Muscle Owl Talks, which concluded our discussion on ableism in society.

"Being talked to like you're not like everybody else is just tiring, but at the same time, you don't want to be mean to people."

"People are so afraid to say the wrong thing that they'll often say nothing."

 

What are you views on ableism?

Muscle Owl Radio - Ep84: Ableism in Newspapers (OwlTalks#9 - 2016)

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Are some newspaper articles ABLEIST?! What is ableism?! We're throwing way back to episode 9 of Muscle Owl Talks with the first half of our ableism introductory chat from 2016.

Muscle Owl Radio - Ep83: Trains and Disability (OwlTalks#8 - 2016)

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An AMAZING new episode of Muscle Owl Talks from last year! We discussed Zoe's debacle on a train, and Michaela and Sara keep us entertained with their experiences.

Muscle Owl Radio - Ep82: SMA Awareness Month 2017 (OwlTalks#65)

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August is SMA Awareness Month - so check out our episode from just a couple of months back! We all know spinal muscular atrophy is a form of muscular dystrophy, but how do its different types vary? Hear our co-editor Michaela Hollywood​ (who has SMAtype2) explain in our recent edition of Muscle Owl Talks!

Muscle Owl Radio - Ep81: Buses, Wheelchairs, and the Supreme Court Ruling (OwlTalks#41)

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We sat down to discuss travelling by bus for disabled people! Back in January the Supreme Court ruled a partial victory where bus drivers and operators are expected to use "moral force" if someone other than a wheelchair user is occupying the priority space on the bus. In recent weeks, bus operators and disabled people have said that more power to remove people is required.

Here is our Muscle Owl Talks episode on the topic from March 2017!

Muscle Owl Radio - Ep80: What is Limb Girdle Muscular Dystrophy?! (OwlTalks#72)

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Limb Girdle Awareness Day 2017 was a great success. Here is our special episode on the condition from the day! One of our fabulous team members, Zoe - who has limb girdle muscular dystrophy herself - explains diagnosis, adapting, and the fairly broad diversity that exists between the various condition types.

Muscle Owl Radio - Ep79: Action Duchenne Conference 2017 - Why Should You Go?! (OwlTalks#71)

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One for all families in the Duchenne muscular dystrophy community! This is our Muscle Owl Talks show previewing the Action Duchenne Conference in November 2017.

We are joined by Action Duchenne CEO Diana Ribeiro and Lynnette Ellison!

Muscle Owl Radio - Ep78: Vivek’s Accessible Trip to the Imperial War Museum! (OwlTalks#70)

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Today's Muscle Owl Talks episode features an annecdote from one of our co-editors, Vivek! We talk accessibility, and in particular, Vivek's recent visit to the airbase and Imperial War Museum in Duxford, UK with Action Duchenne and the Duchenne Family Support Group!

Muscle Owl Radio - Ep77: Limb Girdle Awareness Day 2016 (OwlTalks#14)

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With Limb Girdle Day fast approaching, here is last year's episode from 2016, featuring Peter Zoe and Michaela.

Muscle Owl Radio - Ep76: Motability for Disabled People in the UK?! (OwlTalks#44)

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In the UK, the latest changes to Personal Independence Payments mean many disabled people are having their motability cars taken away from them. A large amount of these people have conditions such as becker muscular dystrophy, and may struggle to walk even short distances. Here's our update from earlier in 2017.

Muscle Owl Radio - Ep75: EHRC Disability Report UK 2017 (OwlTalks#47)

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In May, the Equality and Human Rights Commission launched their 2017 Disability Report, which covered six key areas of life. It concluded progress towards real equality for disabled people over the past twenty years is insufficient and littered with missed opportunities and failures. Here are our views and response.

Tune in to our episode on the report as we investigated its findings and gave our thoughts.

Muscle Owl Radio - Ep74: No Wheelchair on the First Day of School!? (OwlTalks#59)

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Today is World Duchenne Awareness Day. It was also 4 year old Fraser's first day of school! However Fraser - who unlike many with DMD, has never been able to walk - has been refused a motorised wheelchair by the NHS in England, and has been left with no autonomy in his manual chair.

We discuss the situation with Fraser's mother, our good friend, Shelley. And we raise the very concerning normalisation of people having to fund their own wheelchairs.

Muscle Owl Radio - Ep73: World Duchenne Awareness Day with Jon Hastie - Dreams & Aspirations! (OwlTalks#68)

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Tune in to the first of our two special episodes for World Duchenne Awareness Day! We are joined by our friend and regular guest Jon Hastie, who is 36 and has Duchenne muscular dystrophy.

This year's theme is DREAMS, so we discuss how young people with Duchenne muscular dystrophy can overcome any obstacles, plan out, and effectively accomplish their dreams! Jon himself has a Phd and runs his own charity DMD Pathfinders!

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