Muscle Owl Podcast

We’re a cheeky trio talking politics, disability and events. We provide updates and engage in discussion on topics within the neuromuscular and disabled community.

Muscle Owl Radio - Ep99: Understanding the Clinical Trial Process for Rare Diseases (OwlTalks#73)

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This week we host an episode of Muscle Owl Talks we filmed with Diana Ribeiro - the CEO of Action Duchenne. Diana answers our questions on the clinical trial process for families with a child who has a rare disease. If you have any questions, get in touch with us directly, or leave a comment below!

Muscle Owl Radio - Ep98: Duchenne Muscular Dystrophy - Just Children?! (OwlTalks#67 - 2017)

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Duchenne muscular dystrophy.... A childhood condition? After reading a number of posts from around the community, Peter and Vivek respond with their thoughts. How do you think muscular dystrophies should be communicated? Is it fair to a condition to focus on certain age groups? Is it misleading to focus on children with Duchenne when as many adults have the condition? Share your thoughts with us!

Muscle Owl Radio - Ep97: Advice for Newly Diagnosed SMA Parents (OwlTalks#66 - 2017)

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Here's our Muscle Owl Talks episode from the final day of SMA Awareness Month. Michaela Hollywood gives some advice for people who may have just had a child diagnosed with the condition. It's a reminder that the future can still be bright, and many people with spinal muscular atrophy live truly wonderful lives!