Muscle Owl Podcast

We’re a cheeky trio talking politics, disability and events. We provide updates and engage in discussion on topics within the neuromuscular and disabled community.

Muscle Owl Radio - Episode 57: US Healthcare & Pre-existing Conditions (Talks #50)

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The AHCA is ready to replace the ACA (Obamacare). What does that mean at this moment in time?

This week Michaela and Peter are joined by Iowa native, Hannah Soyer, who shares her views on the current issues surrounding the US healthcare bill. What does a pre-existing condition mean? Will disabled people be forced to pay huge sums for their health insurance? What is the future for US healthcare? We will be discussing and investigating through the coming months.

As always, you can find our chats on iTunes (http://apple.co/2rniygJ), and at www.muscleowl.com!

Muscle Owl Radio - Episode 56: Peter Runs the Belfast Marathon 2017 …DRESSED AS AN OWL! (Talks #49)

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So, our editor Peter ran the Belfast Marathon dressed as an owl! Tune in to hear how it went, as he sits down with Michaela. And hear about the upcoming Manchester 10k at the end of the month too!

As always, don't forget to check us out on Facebook, Twitter and at www.muscleowl.com!

Muscle Owl Radio - Episode 55: Michaela’s Bristol University Keynote Speech! (Talks #48)

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Check out our latest episode (which featured in video form as Muscle Owl Talks #48), where Peter and Michaela chat live from Belfast about Michaela's upcoming speech at Bristol University on disability rights!

 

As always, you can find us at www.muscleowl.com and www.facebook.com/muscleowl!

Muscle Owl Radio - Ep54: SMA Treatment Spinraza Approved in Europe (Muscle Owl Talks #46)

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On Friday we received the news that Spinraza - the latest (and first) treatment for spinal muscular atrophy - had been approved by the EMA for use in all types of SMA across Europe.
Here's our catch up chat on the subject, and you can read the full EMA report here: https://www.muscleowl.com/

Muscle Owl Radio - Episode 53: Feeding Tube Week (Muscle Owl Talks #30)

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An episode from our Muscle Owl Talks show (episode30) on Feeding Tubes!

If you like, you can watch the discussion on Facebook or our YouTube channel. But it's here too for when you're on the move!

Sulaiman and Vivek discuss their experiences with feeding tubes, and how they can have such a positive influence on your life!

Muscle Owl Radio - Episode 52: The Podcast Returns!

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Welcome back to the Muscle Owl Podcast!

It's been a while, but we hope you have been keeping up to date with all our latest Muscle Owl media! In our upcoming podcast series, we will be combining our Muscle Owl Talks video shows as audio episodes with introductions from our original hosts Peter, Michaela and Sulaiman.

This week we bring you our latest Muscle Owl Talks episode with Claire O'Hanlon, along with an introduction from Peter and Michaela!

 

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Muscle Owl Radio - Episode 51: Duchenne Awareness Day 2016 with Pedro Fernandes & MDUK

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It's World Duchenne Awareness Day, so this week we are talking to Pedro Fernandes, father of six year old Luca, who has Duchenne muscular dystrophy.

We speak about the diagnosis and discuss our own experiences of diagnosis. Host Peter's brother was diagnosed at four, but our co-host Vivek wasn't diagnosed until he was nine years old!

Young Luca is also eligible for the drug, Translarna, and will be receiving his first set of treatment tomorrow!

Pedro and his family have a family fund with Muscular Dystrophy UK, through which they have completed a variety of different fundraising events, raising tens of thousands of pounds for research into muscular dystrophy.

*It's series 3, and the first episode of our new podcast format. Through 50 episodes, we recorded solely on the audio waves, and had so much fun doing so. Now we have moved over to the videosphere and the wild worlds of Facebook and YouTube! However, all our shows will be broadcast in audio podcast format here, as well as available from iTunes!

Original episode in video: https://www.youtube.com/watch?v=rY6TbVDOocs

Muscle Owl Radio - Episode 50: Forwards We Move

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As many of you will know, we've been away for a long break, recording and publishing our newest series: Muscle Owl Talks.

Muscle Owl Talks is a video show in the same style of our podcast, which is uploaded to YouTube and Facebook.

All episodes will be uploaded here as audio podcasts, but make sure you check out our video version too!

Muscle Owl Radio - Episode 49: Intro to US Presidential Elections with Mike Volkman

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In one of our most insightful episodes yet, we take a look at the US presidential election with our friend and disability advocate, Mike Volkman.

We also discuss the housing regulations in the United States, and compare with our own experiences in the United Kingdom!

As always, if you'd like to get in touch, send us an email to info@muscleowl.com or catch us at www.muscleowl.com

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Muscle Owl Radio - Episode 48: Happy Birthday to Vivek …who is also Trailblazer Spotlight of the Month!

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"I didn't think I'd make 26!" Vivek jokes, as we start the podcast. At 26, Vivek is still consistently poking Duchenne in the face.

This episode, we chat about how Vivek is Trailblazer Spotlight of the Month, and we also catch up on some of the recent goings on at Muscle Owl! Last week we were live on Facebook with two wonderful fundraising Chris and Dave - we mention their fabulous event too!

 

So tune in, have a laugh, and if you'd like to get in touch, find us on Facebook, or send an email to info@muscleowl.com!

 

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Muscle Owl Radio - Episode 47: Steve Way, Comedy and Disability!

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Tune in as we're joined again by our friend Steve Way. Steve has congenital muscular dystrophy, and is a comedian from New Jersey.

In this episode, we chat about Steve's comedy career, accessibility in the States, and what makes people laugh!

As always, if you'd like to get in touch, send an email to info@muscleowl.com, find us at www.muscleowl.com, and give us a LIKE on Facebook too!

Muscle Owl Radio - Episode 46: Sulaiman, Vivek and Peter Monthly Catch Up!

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This week it's an all-male cast as Sulaiman, Vivek and Peter chat about the weekly goings on. Notably, we remember Lord Walton, Vivek speaks about Naidex - the conference for accessible equipment - and we even have a chat about spinal surgery!

As always,  you can tune in on iTunes: http://apple.co/1ooPPFt

and catch us on Facebook too: www.facebook.com/muscleowl

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Muscle Owl Radio - Episode 45: Steve Way and Health Care in the US!

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This week we have special guest Steve Way on the show!

Steve is a comedian and substitute teacher from New Jersey! He also has congenital muscular dystrophy. In this episode we chat to Steve about the health care system in the United States, comparing it to care over here in the UK, and figure out what can be done to improve it!
And make sure you tune in to next week's episode with Steve, as we discuss his career in comedy, and accessibility over in the States.
As always, if you'd like to get in touch, send us an email to info@muscleowl.com and find us on www.facebook.com/muscleowl.
Podcast is always available on iTunes: http://apple.co/1ooPPFt

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Muscle Owl Radio - Episode 44: Duchenne, Care Support and University (with Jordan Wright)

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We conclude our chat with Jordan Wright, discussing his current studies at University!

We also talk about the logistics and failings around personal care assistants whilst studying.

As always, if you'd like to get in touch, visit www.muscleowl.com, or send an email to info@muscleowl.com

Looking for us on iTunes?! Here we are: http://apple.co/1ooPPFt

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Muscle Owl Radio - Episode 43: Jordan Wright, Duchenne & Teenage Years.

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We're joined by our friend Jordan Wright as we discuss the different ways people come to terms with their disability.

Jordan is 19 years old and has Duchenne muscular dystrophy. This is the first episode of our chat with Jordan, so stay tuned for episode 44 later in the week, where he tells us all about his university studies!

As always, if you want to get in touch, email info@muscleowl.com and you can find us on iTunes and Facebook!

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