Muscle Owl Podcast

We’re a cheeky trio talking politics, disability and events. We provide updates and engage in discussion on topics within the neuromuscular and disabled community.

Muscle Owl Radio - Ep65: PS4 Gaming for Disabled People? Vivek Talks Gadgets! (OwlTalks#56)

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Vivek has been developing some solutions to help make his gadgets more accessible! From his PS4 controller to a new extendible cup holder for his wheelchair!

Do you have any handy accessories for gaming?? Tune in to our latest chat and leave a comment below!

Muscle Owl Radio - Ep64: Shelley’s DMD Snowdon Challenge: DONE! (OwlTalks#55)

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It's a week since Shelley Simmonds took her son, Fraser, up Snowdon on her back! Tune in as we chat about how it went!

Fraser is 4 years old and has Duchenne muscular dystrophy. However, unlike many other boys with the condition, Fraser has never been able to walk. So Shelley decided to embark on a mammoth hike and fundraise over £11,000 for research into Duchenne muscular dystrophy while she was at it!

Muscle Owl Radio - Ep63: Charlie Gard & Patient/Parental Consent (OwlTalks#54)

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Charlie Gard is a young child who is currently being cared for at Great Ormond Street Hospital in London; he is currently on life support.
A last chance potential treatment for his condition lies in the US, but his parents are being refused the right to take him out and try the treatment. The doctors now want to turn the life support off, and end his life.
What is the right option? Peter and Michaela discuss...

Muscle Owl Radio - Episode 62: SMA Treatment Spinraza Delayed in UK?! (OwlTalks#53)

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It's a late night edition Muscle Owl Talks!

We discuss the latest regarding SMA and Spinraza (nusinersen) in the UK. 70 children still not on the drug? What is causing the delay?

Muscle Owl Radio - Episode 61: Shelley & Fraser Simmonds - Snowdon for DMD (OwlTalks#52)

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This weekend, our friend Shelley will be climbing Mount Snowdon in the UK - with her young son Fraser on her back!!!

Fraser, who is 4 years old, has Duchenne muscular dystrophy, and their fundraising efforts will support research into the condition.

You can check out Fraser's page here: Fraser & Friends
and their fundraising page: https://www.justgiving.com/fundraising/frasersimmonds

Muscle Owl Radio - Episode 60: Peter & Andrew Review their 10k Race in Manchester (OwlLive)

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Join us as Peter and Andrew look back at their wild race in the Manchester 10k! As we had been discussing earlier, it was Andrew's first race in his powerchair - who says guys with Duchenne muscular dystrophy can't run races?!

This episode was recorded LIVE on Facebook the evening after the race!

Muscle Owl Radio - Episode 59: Peter & Andrew Preview their 10k Race in Manchester (Talks#51)

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Join us for Muscle Owl Talks episode 51, as Peter's brother Andrew makes his first appearance on the show!
Both brothers will be running the Manchester 10k this weekend - in two very different styles!

Muscle Owl Radio - Episode 58: Taxi Ruling in UK (Talks #45)

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Join us for Andrew Duffy's first podcast episode, as he introduces the audio of our Muscle Owl Talks ep45 discussion with our editor Peter.

In the debate, Peter, Michaela, and Zoe to discuss the latest Supreme Court ruling for taxis serving disabled people in the UK.

As always, you can find us at www.muscleowl.com and on www.facebook.com/muscleowl!

Muscle Owl Radio - Episode 57: US Healthcare & Pre-existing Conditions (Talks #50)

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The AHCA is ready to replace the ACA (Obamacare). What does that mean at this moment in time?

This week Michaela and Peter are joined by Iowa native, Hannah Soyer, who shares her views on the current issues surrounding the US healthcare bill. What does a pre-existing condition mean? Will disabled people be forced to pay huge sums for their health insurance? What is the future for US healthcare? We will be discussing and investigating through the coming months.

As always, you can find our chats on iTunes (http://apple.co/2rniygJ), and at www.muscleowl.com!

Muscle Owl Radio - Episode 56: Peter Runs the Belfast Marathon 2017 …DRESSED AS AN OWL! (Talks #49)

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So, our editor Peter ran the Belfast Marathon dressed as an owl! Tune in to hear how it went, as he sits down with Michaela. And hear about the upcoming Manchester 10k at the end of the month too!

As always, don't forget to check us out on Facebook, Twitter and at www.muscleowl.com!

Muscle Owl Radio - Episode 55: Michaela’s Bristol University Keynote Speech! (Talks #48)

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Check out our latest episode (which featured in video form as Muscle Owl Talks #48), where Peter and Michaela chat live from Belfast about Michaela's upcoming speech at Bristol University on disability rights!

 

As always, you can find us at www.muscleowl.com and www.facebook.com/muscleowl!

Muscle Owl Radio - Ep54: SMA Treatment Spinraza Approved in Europe (Muscle Owl Talks #46)

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On Friday we received the news that Spinraza - the latest (and first) treatment for spinal muscular atrophy - had been approved by the EMA for use in all types of SMA across Europe.
Here's our catch up chat on the subject, and you can read the full EMA report here: https://www.muscleowl.com/

Muscle Owl Radio - Episode 53: Feeding Tube Week (Muscle Owl Talks #30)

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An episode from our Muscle Owl Talks show (episode30) on Feeding Tubes!

If you like, you can watch the discussion on Facebook or our YouTube channel. But it's here too for when you're on the move!

Sulaiman and Vivek discuss their experiences with feeding tubes, and how they can have such a positive influence on your life!

Muscle Owl Radio - Episode 52: The Podcast Returns!

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Welcome back to the Muscle Owl Podcast!

It's been a while, but we hope you have been keeping up to date with all our latest Muscle Owl media! In our upcoming podcast series, we will be combining our Muscle Owl Talks video shows as audio episodes with introductions from our original hosts Peter, Michaela and Sulaiman.

This week we bring you our latest Muscle Owl Talks episode with Claire O'Hanlon, along with an introduction from Peter and Michaela!

 

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Muscle Owl Radio - Episode 51: Duchenne Awareness Day 2016 with Pedro Fernandes & MDUK

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It's World Duchenne Awareness Day, so this week we are talking to Pedro Fernandes, father of six year old Luca, who has Duchenne muscular dystrophy.

We speak about the diagnosis and discuss our own experiences of diagnosis. Host Peter's brother was diagnosed at four, but our co-host Vivek wasn't diagnosed until he was nine years old!

Young Luca is also eligible for the drug, Translarna, and will be receiving his first set of treatment tomorrow!

Pedro and his family have a family fund with Muscular Dystrophy UK, through which they have completed a variety of different fundraising events, raising tens of thousands of pounds for research into muscular dystrophy.

*It's series 3, and the first episode of our new podcast format. Through 50 episodes, we recorded solely on the audio waves, and had so much fun doing so. Now we have moved over to the videosphere and the wild worlds of Facebook and YouTube! However, all our shows will be broadcast in audio podcast format here, as well as available from iTunes!

Original episode in video: https://www.youtube.com/watch?v=rY6TbVDOocs

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