Muscle Owl Podcast

We’re a cheeky trio talking politics, disability and events. We provide updates and engage in discussion on topics within the neuromuscular and disabled community.

Muscle Owl Radio - Ep65: PS4 Gaming for Disabled People? Vivek Talks Gadgets! (OwlTalks#56)

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Vivek has been developing some solutions to help make his gadgets more accessible! From his PS4 controller to a new extendible cup holder for his wheelchair!

Do you have any handy accessories for gaming?? Tune in to our latest chat and leave a comment below!

Muscle Owl Radio - Ep64: Shelley’s DMD Snowdon Challenge: DONE! (OwlTalks#55)

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It's a week since Shelley Simmonds took her son, Fraser, up Snowdon on her back! Tune in as we chat about how it went!

Fraser is 4 years old and has Duchenne muscular dystrophy. However, unlike many other boys with the condition, Fraser has never been able to walk. So Shelley decided to embark on a mammoth hike and fundraise over £11,000 for research into Duchenne muscular dystrophy while she was at it!

Muscle Owl Radio - Ep63: Charlie Gard & Patient/Parental Consent (OwlTalks#54)

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Charlie Gard is a young child who is currently being cared for at Great Ormond Street Hospital in London; he is currently on life support.
A last chance potential treatment for his condition lies in the US, but his parents are being refused the right to take him out and try the treatment. The doctors now want to turn the life support off, and end his life.
What is the right option? Peter and Michaela discuss...

Muscle Owl Radio - Episode 62: SMA Treatment Spinraza Delayed in UK?! (OwlTalks#53)

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It's a late night edition Muscle Owl Talks!

We discuss the latest regarding SMA and Spinraza (nusinersen) in the UK. 70 children still not on the drug? What is causing the delay?

Muscle Owl Radio - Episode 61: Shelley & Fraser Simmonds - Snowdon for DMD (OwlTalks#52)

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This weekend, our friend Shelley will be climbing Mount Snowdon in the UK - with her young son Fraser on her back!!!

Fraser, who is 4 years old, has Duchenne muscular dystrophy, and their fundraising efforts will support research into the condition.

You can check out Fraser's page here: Fraser & Friends
and their fundraising page: https://www.justgiving.com/fundraising/frasersimmonds

Muscle Owl Radio - Episode 60: Peter & Andrew Review their 10k Race in Manchester (OwlLive)

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Join us as Peter and Andrew look back at their wild race in the Manchester 10k! As we had been discussing earlier, it was Andrew's first race in his powerchair - who says guys with Duchenne muscular dystrophy can't run races?!

This episode was recorded LIVE on Facebook the evening after the race!